Falling Awake
In the early hours of this morning I woke with a start. I’d been dreaming I was in a house with Fat Sister. It was my house, although it wasn’t the castle. We were in the bathroom and she was helping...
View ArticleOver Reacting Dream
I woke up with a start yesterday morning after a strange dream. I’ve described before in this blog how I sometimes overreact to tiny frustrations, and what woke me was an overreaction, but this time it...
View ArticleEnd of the World, End of a Dream, Start of a Fit.
I had a very odd experience the other night when a dream and a ‘ticcing fit’ became intertwined. This has happened before but on this occasion it was particularly strange. After the fit had finished I...
View ArticleThe Rubbish Idea Dream
I’ve written about dreams quite a bit recently, and I wrote last month about a new Inclusive Technology Prize I’m helping to judge that’s looking for enabling innovations for disabled people. The other...
View ArticleWaving Calves
Everyone who’s ever met me knows I move about a lot! My motor tics (involuntary movements) are frequent, varied and for the most part very obvious. You can’t miss my constant chest banging, erratic...
View ArticleHitting the Wall
Yesterday evening I hit the wall – a physical wall and a wall of tiredness. It’d been a busy day and by 11pm I felt my body giving up. I moved from feeling fine to being overtaken by the discomfort of...
View ArticleLate Night Time Travel
The last few nights have felt a bit like time-travel for me, but it’s a sort of time-travel that I’m not particularly excited about. Until four years ago I used to tic in my sleep. According to Fat...
View ArticleHitting the Wall
Yesterday evening I hit the wall – a physical wall and a wall of tiredness. It’d been a busy day and by 11pm I felt my body giving up. I moved from feeling fine to being overtaken by the discomfort of...
View ArticleLate Night Time Travel
The last few nights have felt a bit like time-travel for me, but it’s a sort of time-travel that I’m not particularly excited about. Until four years ago I used to tic in my sleep. According to Fat...
View ArticleThe Walls Are Rolling
I’m in the process of learning lines for a new project. In my usual way I’ve written them out on big sheets of paper and stuck them round the walls in the castle. There’s one such sheet above my bed...
View ArticleLight Springs Forward
Yesterday morning I woke up after a much-needed sleep. It was 10am and I was really impressed that I’d slept so late, something I never normally do. The sun was pouring through a crack in my blind and...
View ArticleDancing Shadows
Lying in bed last night I was exceptionally tired but finding it hard to sleep because of my wriggly body. My blind was open a little and the orange light from the lamp-post outside was creeping in...
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Morning Melbourne
There are some tough things about having Tourettes, and for me one of them is disrupted sleep. At 5:30 this morning I woke up having a ‘ticcing fit’. At first I wasn’t too worried about dropping off...
View ArticleWriting It Out
It’s 4.27am. The castle is still. I am not. But I never am. The room is gently lit by my bedside lamp, and now by the glow of my computer screen as I type. The garden outside is lit by the lamp-post’s...
View ArticleLight Bulb Moments
I’m finding it increasingly painful to switch my bedside light on and off. My support workers have been doing it for me most of the time but in the middle of the night I prefer to do it for myself....
View ArticleInclined To Sleep
I’ve been struggling to get comfy at night for the last few months and I’ve been resorting to precarious piles of pillows to help me reach the ever-elusive pain-free position. Then, a couple of weeks...
View ArticleIn Bed With Stephen & Sherlock
Over last few months I’ve spent much more time in bed than I would’ve liked. On-going issues with pain, nausea and fatigue mean I need to rest a lot. Listening to audio books is something I’ve been...
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Bed Space
It’s been a hard week for me from a pain perspective and I’ve spent a lot of time in bed as a result. During the day this all feels quite cosy, people pop in and out, and light pours in through my...
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To The Edges And Beyond
Years ago I was into drawing the connections between different objects in my room. I’d map them, usually using myself as the starting point. Tonight as I lay in bed trying to sleep, the coiled ball of...
View Article4.18am Again
This is hard. Really fucking hard. It’s 4.18am and I’m awake again. I’m sore and tired and lonely. I feel sick and fed up. For months and months, pain and nausea have been eroding my sleep, which was...
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